Inflammatory Bowel Disease UK (IBD UK) has published updated standards for IBD care, in line with the revised British Society of Gastroenterology guideline.
The standards include 59 statements that describe what high‑quality care and treatment should look like for patients interacting with IBD services. These statements cover seven key areas essential to a high‑quality IBD pathway:
- the IBD service
- newly diagnosed
- flare management
- inpatient care
- ongoing care.
IBD UK has also launched a benchmarking tool to enable assessment of IBD services to evaluate how well they are performing under the updated standards. From 1 October 2019, users will be able to complete a self‑assessment with reports showcasing results to be released in quarter 1 of 2020.
To enable patients to have their say, Crohn’s and Colitis UK is supporting IBD UK with the first UK-wide patient survey of people with IBD, to be held on 8 July 2019, allowing them an anonymous opportunity to feedback on their care. It is hoped that the survey can result in the same kind of service improvement that the National Cancer Patient Experience Survey drove for cancer care.